Check out our interviews where we explore the Hip Dysplasia Experience through the lens of people who live it. Want to participate in a patient experience interview? Contact us at Miles4Hips@gmail.com. We would love to meet you!
Sally was born with congenital hip dislocation. She shares the challenges she encountered in her hip dysplasia journey, as well as advice for individuals with hip dysplasia, unique perspectives she has gained, and the positive interactions she has had with healthcare professionals throughout her care.
Kait is a patient advocate who shares her experience with miserable malalignment syndrome including how this diagnosis has impacted her work, sports, and sense of self. She talks about how she has learned to embrace challenges and the opportunity to develop new skills and passions.
Heather is an education specialist who loves doing aerial arts in her free time. She was treated for congenital hip dislocation as a baby, then went on to have bilateral PAOs in her 30s and surgeries to address rotational problems in her femurs and tibias.
Tessa is a New Zealand flutist/composer who is based in New York City. She was (finally) diagnosed with dysplasia at age 57, had a very successful peri-acetabular osteotomy, and keeps her hip happy with all the stairs she has to climb in NYC. Tessa shares great wisdom around self-advocacy, finding the right care team, and trusting her body.
Eve is a hip dysplasia advocate who served as a Miles4Hips Junior Board Member in 2024. In this video she shares about her experience as a patient participant in hip dysplasia research looking at outcomes for patients who underwent PAO surgery with or without labral repair.
Hip dysplasia advocate, Miles4Hips junior board member, and creator of the Instagram page, pao_resource_centre, Eve joins us with her Mom, Caroline, a physio in Canada. Eve and her Mom share about Eve’s hip dysplasia and PAO surgery and what they have both learned and gained through the experience.
Annick is a UK-based marathoner who had a significant increase in hip pain in her late 40s. Annick shares about her journey to diagnosis and treatment. She underwent bilateral PAOs with Mr. Johan Witt over a decade ago, and her hips are still going strong!
Leah’s experiences as a parent of two children born with hip dysplasia inspired her entrepreneurial journey to develop a clothing line for infants undergoing hip dysplasia treatment, Little Hippy Co. In this inspirational interview, she shares how she uses her passion and talents to serve the hip dysplasia community.
Cassidy is a university student who underwent PAO for hip dysplasia. She talks about her delayed diagnosis and how the patient network helped her get diagnosed. Cassidy talks about the mental health implications of hip dysplasia and highlights the importance of the entire patient care team.
Alexis is an 11-year-old who is on one of our youngest Miles4Hips advocates. She joins with her parents to share perspective of her late hip dysplasia diagnosis and navigating this diagnosis, surgeries, and follow-up care during her childhood.
Emma underwent a total hip replacement after receiving a late diagnosis of hip dysplasia. She discusses the biopsychosocial impacts of hip dysplasia and shares her experiences with self-advocacy, navigating healthcare system barriers both before and after surgery, and her desire for more specialist physical therapy services for people with hip dysplasia.
Stephanie and Kelly are two of the co-founders of the Pediatric Hip Dysplasia Action Network (PHDAN). They share how their families’ experiences have inspired their advocacy work. Stephanie and Kelly represent their team in this interview to share the mission, vision, and goals of PHDAN. To learn more or get involved, visit www.phdan.org.
Angela shares how her daughter’s late hip dysplasia diagnosis turned her family’s world “upside down” as they navigated Mia’s hip surgery and “spica life.” Angela is inspired to improve early diagnosis and treatment and is working with a newly formed DDH advocacy group to make this vision a reality.
Kelli is a physical therapist assistant, hip dysplasia patient, and passionate advocate. Kelli shares about her diagnosis, return-to-sport, and her experiences supporting others with hip dysplasia through her professional work and advocacy.
Dr. Emily Schaeffer is a co-founder of the Hip Hope Network and leads the Hippy Lab research team, including the Global Hip Dysplasia Registry. Watch to learn about all of the research she and her team are doing to improve hip health!
Dr. Julie Jacobsen is a physical therapist and associate professor at the School of Health Professions at Via University in Denmark. Julie’s shares about her experiences treating patients with hip dysplasia and her research projects.
Team Week Videos
We have done several “Team Weeks” over the years where we interview different members of the hip dysplasia care team to gain various perspectives around hip dysplasia and hip dysplasia care. These videos include interviews with patients, families, patient advocates, surgeons, physical therapists, and other healthcare providers.
In 2025 we changed things up and did a Hip Dysplasia Around the World theme week. Through the lenses of surgeons, physical therapists, and patient advocates, we learned about the hip dysplasia care and research, education, and advocacy priorities.
Day of Movement Videos
Our annual Day of Movement is our largest event of the year where hip dysplasia patients, families, friends, colleagues, and healthcare providers join together from all over the world to raise hip dysplasia awareness, support the International Hip Dysplasia Institute, and enjoy movement for healthy hips, bodies, and minds. Check out our celebratory post-event videos from previous years, and follow us to join in the fun this October!
Pass the Crutch Videos
Our Pass the Crutch videos have been a fun way to build community and raise hip dysplasia community each June when we celebrate Hip Dysplasia Awareness Month.
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Awareness Videos
Check out some of our videos that capture the perspectives and priorities of patients, families, and care providers around hip dysplasia. Consider sharing them with family, friends, colleagues, and healthcare providers to help raise awareness and help others understand different perspectives around hip dysplasia.
Vision Video
Hip dysplasia patients, families, and health care providers share their vision for the future of hip dysplasia.
Silver Linings
Patients share some of the unexpected silver linings of their hip dysplasia journeys.
I have learned…
Patients answered the question: What has hip dysplasia taught you about yourself.
I wish others knew…
Patients answered the question: What do you wish others knew about hip dysplasia?
I have gained…
Patients answered the question: What have you gained from your hip dysplasia experience?
