Check out our interviews where we explore the Hip Dysplasia Experience through the lens of people who live it. Want to participate in a patient experience interview? Contact us at Miles4Hips@gmail.com. We would love to meet you!
Sally was born with congenital hip dislocation. She shares the challenges she encountered in her hip dysplasia journey, as well as advice for individuals with hip dysplasia, unique perspectives she has gained, and the positive interactions she has had with healthcare professionals throughout her care.
Kait is a patient advocate who shares her experience with miserable malalignment syndrome including how this diagnosis has impacted her work, sports, and sense of self. She talks about how she has learned to embrace challenges and the opportunity to develop new skills and passions.
Heather is an education specialist who loves doing aerial arts in her free time. She was treated for congenital hip dislocation as a baby, then went on to have bilateral PAOs in her 30s, and is currently awaiting additional surgeries to correct alignment issues in her legs.
Tessa is a New Zealand flutist/composer who is based in New York City. She was (finally) diagnosed with dysplasia at age 57, had a very successful peri-acetabular osteotomy, and keeps her hip happy with all the stairs she has to climb in NYC. Tessa shares great wisdom around self-advocacy, finding the right care team, and her trusting body.
Eve is a hip dysplasia advocate who served as a Miles4Hips Junior Board Member in 2024. In this video she shares about her experience as a patient participant in hip dysplasia research looking at outcomes for patients who underwent PAO surgery with or without labral repair.
Hip dysplasia advocate, Miles4Hips junior board member, and creator of the Instagram page, pao_resource_centre, Eve joins us with her Mom, Caroline, a physio in Canada. Eve and her Mom share about Eve’s hip dysplasia and PAO surgery and what they have both learned and gained through the experience.
Annick is a UK-based marathoner who had a significant increase in hip pain in her late 40s. Annick shares about her journey to diagnosis and treatment. She underwent bilateral PAOs with Mr. Johan Witt over a decade ago, and her hips are still going strong!
Team Week Videos
We do an annual “Team Week” where we interview different members of the hip dysplasia care team including patients, families, surgeons and other healthcare providers, and patient advocates. Check out our videos from previous years’ Team Weeks.
Our annual Day of Movement is our largest event of the year where hip dysplasia patients, families, friends, colleagues, and healthcare providers join together from all over the world to raise hip dysplasia awareness, support the International Hip Dysplasia Institute, and enjoy movement for healthy hips, bodies, and minds.
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Promo Video
Pass the Crutch Videos
Our annual Pass the Crutch videos have been a fun way to build community and raise hip dysplasia community each June when we celebrate Hip Dysplasia Awareness Month.
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Awareness Videos
Check out some of our videos that capture the perspectives and priorities of patients, families, and care providers around hip dysplasia. Consider sharing them with family, friends, colleagues, and healthcare providers to help raise awareness and help others understand different perspectives around hip dysplasia.
Vision Video
Hip dysplasia patients, families, and health care providers share their vision for the future of hip dysplasia.
Silver Linings
Patients share some of the unexpected silver linings of their hip dysplasia journeys.
I have learned…
Patients answered the question: What has hip dysplasia taught you about yourself.
I wish others knew…
Patients answered the question: What do you wish others knew about hip dysplasia?
I have gained…
Patients answered the question: What have you gained from your hip dysplasia experience?
