International Hip Dysplasia Registry

The International Hip Dysplasia (IHDR) study group is an international collaboration of surgeons and medical professionals dedicated to improving the lives of children with hip dysplasia. By addressing current gaps of knowledge in the clinical practices of hip dysplasia as well as through the development of global education and advocacy initiatives, IHDR aims to optimize patient care in health care systems around the world.

Previous work done by the International Hip Dysplasia Institute (IHDI) has identified the need for comprehensive long-term follow-up. Residual acetabular dysplasia and/or the need for further treatment may not become apparent until later in childhood or adolescence thus continuous follow-up is needed in order to identify risk factors and establish appropriate screening protocols and treatment.

Through a prospective, multi-center hip dysplasia registry, IHDR is working towards increasing the amount of high quality evidence in the DDH literature. Data from the registry will be used to improve and standardize current DDH practices around the globe, with the goal of determining the most effective DDH screening and management techniques. This registry provides a unique and unprecedented platform for examining numerous aspects of the full DDH spectrum, including long-term treatment outcomes and risk factors.

IHDR is comprised of Principal investigators, investigators, physicians and other health care professions from a large variety of countries and health care systems, reflecting the wide breadth of expertise and experience in the group. The host institution of the IHDR registry is British Columbia Children’s Hospital (BCCH) at the University of British Columbia (UBC) in Vancouver, Canada.