Going the Extra Mile for Hip Dysplasia

Research Opportunities

Miles4Hips believes that care and outcomes for hip dysplasia patients will be optimized when patients partner with medical providers and researchers.

If you are a hip dysplasia patient, please visit our site to have the opportunity to participate in hip-dysplasia related research projects from around the world.  This is a great way to have a voice, share your experience, and help improve the lives of people living with hip dysplasia.

If you are a researcher, please feel free to share information about your projects with us.  We would love to help you recruit participants so that you can contribute to the literature and knowledge base for this diagnosis and patient population.

Current studies:

Researchers in Texas have developed a survey to learn more about hip pain, treatment experiences, and quality of life for individuals with hip dysplasia and other commonly seen hip diagnosis.

Research Team: John Gladdis, University of Texas School of Medicine; Dr. Joel Wells, Baylor Scott-White (Texas)

From the research team: Thank you for taking the time to complete this survey! The following hip questionnaire is a complete set of questions to help understand your hip pain. This questionnaire is completely voluntary and will take about 10 minutes. Your answers will be completely anonymous. Each question is important, and although some questions may be similar, they all serve a purpose.

We genuinely thank you for your time and effort. You do not have to take part in this survey. If you decide to take part and later change your mind, you are free to stop at any time. There are no risks or benefits to you for being in this study and you have the option to not complete the survey and not be in the study. 

Click here to complete the survey

Previous studies:

Here are some of the previous studies Miles4Hips has collaborated on by sharing information with our community. Through these studies, patients and families have had the opportunity to get involved by sharing their voice and perspectives.

The IHDR, led by Dr. Kishore Mulpari, studied patient and parent experiences with hip dysplasia care processes. Click here for free access to the article that was published to share the study results.
The late Dr. Tina Gambling and Professor Andrew Long studied developed an outcome measure that can be used to assess the impact of hip dysplasia and related treatments on patients with hip dysplasia. Click here for free access to the article that was published to share the study results.
Dr. Mulpari’s team welcomed families to share their experiences with bracing for hip dysplasia treatment.
The information collected through their survey will help us learn more about the greatest areas of concern when using these treatment orthoses, and how we can improve the overall experience for families in the future.