Going the Extra Mile for Hip Dysplasia

Our Stories – Adult Diagnosis and Treatment

Alexa

Alexa is a long-time supporter and contributor to Miles4Hips. As a running coach and massage therapist, she has created many patient resources related to rehabilitation and return-to-running. Alexa is also a Miles4Hips Champion and has created advocacy and awareness, as well as additional fundraising for the IHDI.

Andrea

Andrea, an active adult diagnosed with hip dysplasia, shares a video story of her PAO surgeries and how she has overcome complications and challenges from them. Andrea shares advice and inspiration for other patients going through hip dysplasia.

Betsy

Betsy Miller is a hip dysplasia advocate and has written several books related to hip dysplasia. She was treated as an infant and recently had hip replacement. Betsy shares lessons she learned along the way.

Claire

Claire is an athlete, musculoskeletal specialist physiotherapist, and hip dysplasia patient in the UK who is also a hip dysplasia advocate and valuable contributor to Miles4Hips.

Connie

Connie, an adult hip dysplasia patient, shares her journey through multiple hip surgeries, including arthroscopies and a PAO surgery, and how she came to accept having 2 hip replacements in her early 40s.

Emily

An adult hip patient shares her story about being treated in infancy for hip dysplasia, undergoing a PAO as a young adult, and the lessons she has learned through her experiences.

Erin

An adult hip dysplasia patient shares her poignant story about undergoing PAO and labral reconstruction surgeries and the many lessons as she returned to her roles as mother, wife, harpist, and grand adventurer.

Kaitlynn

Kaitlynn, an ortho/trauma nurse and dance/gymnastics teacher shares her experience of being diagnosed with hip dysplasia, undergoing a PAO at age 30 (at a children’s hospital!), and her optimism for returning to dance.

Kelli

Kelli, a hip dysplasia patient, nurse, and yoga enthusiast, shares her life-long story of hip dysplasia, including being treated as a child, undergoing a PAO as a college student in 1994, and having a total hip replacement in 2013.

Laura

A musical theatre actor shares her story about being diagnosed with hip dysplasia, undergoing PAO surgery, and working towards her great comeback

Sarah and Hannah

Sarah shares her story of supporting her baby, Hannah, through hip dysplasia while finding out about her OWN hip dysplasia diagnosis.

Linda

Linda, an adult hip dysplasia patient and illustrator, shares her story of complex hip dysplasia diagnosis and treatment and how she has used her experience to support others through development of her Adult Hip Dysplasia Rehab Strategies group

Marie-Christine

Marie-Christine shares the story of her hip dysplasia journey, and the importance of learning to navigate the healthcare system and advocate for herself.

Ashley

Miles4Hips board member Ashley shares her story of perseverance in the face of 24 hip surgeries, Ehlers-Danlos Syndrome, complications, infections, the loss of her hip and 1/3 of her proximal femur. She does not let this get in the way of her life, and has found a love of adaptive sports including skiing and wheelchair racing.

MaryBeth

An American aerial dancer shares her story about being diagnosed with hip dysplasia while living abroad and undergoing 2 PAO surgeries in Denmark.

Amy

Amy is a yoga teacher who was diagnosed with hip and shoulder dysplasia and hypermobility (hEDS). Watch her video to hear her story and how she now uses her journey to teach others with hypermobility how to safely and freely enjoy yoga.

Mariah

Mariah shares her story of growing up with pain and limited function due to hip dysplasia. She provides detailed accounts of her 9 (yes, 9!) hip surgeries and how she has overcome adversity.

Sara’s Story

Sara shares her multi-year journey of seeking answers for her chronic hip pain in hopes that her story and advocacy will help other patients receive earlier diagnosis and treatment.

Marisol – English

Marisol shares her story of hip dysplasia and how her total hip replacement has helped her get back to all of the activities she enjoys and has inspired her beautiful artwork.

Marisol – Espanol

Jackie

Jackie is a yoga instructor and future physical therapist.  She shares the story of her dysplasia diagnosis and PAO surgery.

Emily and Annabelle

Emily and Annabelle’s family shares their story of how hip dysplasia has affected their lives across generations. They share how they have used their experience to effect change in screening practices in their pediatrician’s office. 

Jade

Jade is a theatre (operating room) nurse from Western Australia. She shares her hip dysplasia story of her diagnosis then PAO, THR and hip arthroscopy.

Kaitlyn

Kaitlyn is an occupational therapist who endured multiple unsuccessful hip surgeries. She persevered and advocated to get a correct diagnosis of a complicated condition called Miserable Malalignment. She now dreams of educating others about this diagnosis and using her journey to inspire others to return to Meaningful Movement.

Amber

Amber shares her lifelong journey with hip dysplasia and her decision to have a total hip replacement in her early 20s. She provides encouragement to other patients that you’re never too young to have to accept life in pain

Meghan

Meghan shares her long journey to getting an accurate hip dysplasia diagnosis after the birth of her two boys. She recently underwent a PAO surgery and is hoping to be back to hiking and playing with her kids without pain!

Beth

Hip dysplasia advocate, Beth, shares her Vlog which documents her life and experiences with hip dysplasia as she prepares for a total hip replacement in fall, 2022.

Allison

Allison’s hip dysplasia was treated in childhood and again in her adult years, but it has never slowed her down. She now walks to raise awareness and shares her faith and passion to support children and familes navigating this diagnosis.

Shaun

Shaun’s hip dysplasia was treated in early childhood, but it never fully resolved. Shaun has never let his pain stop hip from living a full life. Shaun had a THR when he was 22. He continues to be active and lives by the mantra “I’m in pain but do it anyway.”

Kyle

Kyle’s hip dysplasia journey started over a decade ago, But now, in his mid 30s, he is recovering well from PAO surgery and is looking forward to many years of keeping up with his ice hockey playing son!

Coley

Coley shares the story of her PAO, non-union and THR, and how her volunteer work with service dogs for veterans and first responders helped her through this.

Leah

Leah shares how her missed hip dysplasia diagnosis as a child led to chronic pain, limited mobility, and significant weight gain as an adult. She persevered to get a correct diagnosis. Leah underwent weight-loss surgery and a total hip replacement, and is feeling better than ever!

Nicole

Nicole shares how her hip dysplasia diagnosis was missed until adulthood. She underwent multiple surgeries and experienced complications, but has now returned to her work as a wedding photographer and is enjoying healthy, pain-free hips!

Kelli

Kelli is a physiotherapist, triathlete, and hip dysplasia advocate who was diagnosed and underwent bilateral PAOs in her 40s. Kelli is passionate about hip dysplasia education and awareness and runs the Hippies Club.

Emma

Emma shares the story of her hip dysplasia diagnosis as an adult, and how she manages her symptoms while she prepares for her hip replacement. Emma is also an advocate for disability rights “I really think we need to change the conversation around disability and accessibility in the UK and beyond.”

Gabriella

Gabriella had hip pain for 10 years before being diagnosed with hip dysplasia. She recently had a PAO and is looking forward to seeing where the next few months take her.

Thank you for enjoying the hip dysplasia stories. The stories shared by our community members are intended for information and entertainment only. We are incredibly grateful to our hip dysplasia community members who have taken the time to share their experiences and journeys through hip dysplasia. These stories reflect individual experiences and journeys. Nothing in these stories is intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. Miles4Hips does not endorse specific healthcare providers or institutions, and information or opinions shared in these stories does not necessarily reflect those of Miles4Hips or the International Hip Dysplasia Institute. 

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