Our Stories – PAO Stories

Alexa

Alexa has been a long-time supporter and contributor to Miles4Hips. As a running coach and massage therapist, she has created many rehabilitation and return-to-running patient resources. Alexa is a Miles4Hips Champion and organized a successful campaign.

Andrea

Andrea is an active adult diagnosed with hip dysplasia who shared a video story about her PAO surgeries. Andrea shares how she overcame challenges and complications, and she shares advice and inspiration for individuals with hip dysplasia.

Ashley

Miles4Hips board member, Ashley, shares her story of perseverance in the face of 24+ hip surgeries, EDS, complications, infections, the loss of her hip and 1/3 of her proximal femur. She does not let this get in the way of her life and has found a love for adaptive sports!

Rylee

Rylee shares her story of being diagnosed with hip dysplasia and undergoing PAO surgery after a failed arthroscopy. She shares, “I hope each and every person will fight to get answers and never give up.”

Cianna

Cianna, a teen hip dysplasia patient and dancer, shares her story of injury, diagnosis, and preparations for PAO surgery.

Claire

Claire is an athlete, physiotherapist, and hip dysplasia patient in the UK who is a hip dysplasia advocate and has developed valuable resources for Miles4Hips.

Connie

Connie, an adult hip dysplasia patient, shares her journey through multiple hip surgeries, including arthroscopies and a PAO surgery, and how she came to accept having 2 hip replacements in her early 40s.

Emily

An adult hip patient shares her story about being treated in infancy for hip dysplasia, undergoing a PAO as a young adult, and the lessons she has learned through her experiences.

Emily and Annabelle

Emily and Annabelle’s family shares their story of how hip dysplasia has affected their lives across generations. They share how they have used their experience to effect change in screening practices in their pediatrician’s office. They hope their awareness efforts will prevent other families from dealing with complications from late diagnosis.

Erin

An adult hip dysplasia patient shares her poignant story about undergoing PAO and labral reconstruction surgeries and the many lessons as she returned to her roles as mother, wife, harpist, and grand adventurer.

Grace

Grace, a teenage hip dysplasia patient and avid dancer, shares how she has maintained positivity in light of her diagnosis and PAO surgeries

Hannah

Hannah, a teenage hip dysplasia patient and one of our Miles4Hips Champions, shares her story of multiple surgeries and how her journey has positively shaped her life.

Jackie

Jackie is a yoga instructor and future physical therapist.  She shares the story of her dysplasia diagnosis and PAO surgery.

Kaitlynn

Kaitlynn is an ortho-trauma nurse and dance/gymnastics teacher who shares her experience of being diagnosed with hip dysplasia and undergoing a PAO at age 30. She is optimistic to return to dance!

Kathryn

Kathryn, an avid softball player, shares her story of perseverance. She underwent four surgeries in four years, including three hip arthroscopies, and then her PAO during the Covid pandemic.

Keely

Keely, a young adult hip dysplasia patient and mastermind behind the original Miles4Hips “Pass the Crutch” video, shares her complicated journey to get a proper diagnosis and how she is preparing for a future surgery.

Kelli

Kelli, a hip dysplasia patient, nurse, and yoga enthusiast, shares her life-long story of hip dysplasia. She was treated as a child, underwent PAO surgery as a college student in 1994, and had a THR in 2013.

Laura

Laura is a musical theater actor who shares her story about being diagnosed with hip dysplasia, undergoing PAO surgery, and working towards her great comeback!

Lauren

Lauren shares her inspiring story of overcoming adversity, starting as a tiny baby in the NICU and continuing through childhood and teenage years filled with orthopedic surgeries. Lauren is in college and dreams of becoming an orthopedic surgeon.

Mariah

Mariah shares her story of growing up with pain and limited function due to hip dysplasia. She provides detailed accounts of her 9 (yes, 9!) hip surgeries and how she has overcome adversity.

Marie-Christine

Marie-Christine shares her hip dysplasia story and talks about the importance of learning to navigate the healthcare system and advocate for herself.

MaryBeth

An American aerial dancer shares her story about being diagnosed with hip dysplasia while living abroad and undergoing 2 PAO surgeries in Denmark.

Sara

Sarah shares her multi-year journey of seeking answers for her chronic hip pain. She hopes that her story and advocacy will help other patients receive earlier diagnoses and treatment.

Sydney

Sydney tells the story of her diagnosis, PAO surgery and recovery as a teen. She also shares her insights into how her journey has changed and inspired her. “I hope to inspire others to get through this no matter how hard it is because if you can get through this, you can get through almost anything!”

Meghan

Meghan shares her long journey to getting an accurate hip dysplasia diagnosis after the birth of her two sons. She recently underwent a PAO surgery and is hoping to be able to hike and play with her kids without pain!

Erin

Erin is a teenager and co-founder of Positive PAO who underwent a PAO and labral repair in 2021. She is gearing up for her next round of surgeries later in 2022. Erin brings hope and support to others going through hip dysplasia surgery.

Alexa’s Story

Alexa tells the story of her quest for a diagnosis and PAO surgery. She also shares some great advice, “I also stopped saying ‘I can’t,’ and added ‘yet’ to the end of every statement that had to do with my abilities.”

Shannon

Shannon shares her story of returning to soccer after many challenges, including 9 hip surgeries.

Kyle

Kyle’s hip dysplasia journey started over a decade ago. But he is now in his mid 30s and is recovering well from PAO surgery. Kyle looks forward to many years of keeping up with his son while playing ice hockey!

Jade

Jade is a theatre (operating room) nurse from Western Australia. She shares her hip dysplasia story with multiple surgeries including hip arthroscopy, PAO, and THR.

Cam

Cam’s journey to receiving a hip dysplasia diagnosis and, ultimately, PAO surgery, was riddled by accidents, injuries, and pushing through pain. Cam shares his message to others to “fight for it with everything you’ve got. Look for the light in all the darkness.”

Allyiah

Allyiah shares her frustrating journey of misdiagnosis and feeling disregarded by the medical community. She shares the emotional impact of her journey to her hip dysplasia diagnosis and provides strong examples of perseverance and self-advocacy.

Nicole

Nicole shares how her hip dysplasia diagnosis was missed until adulthood. She underwent multiple and had multiple complications, but she has not returned to her work as a wedding photographer and is enjoying pain-free hips.

Kelli

Kelli is a physical therapy assistant, triathlete, and hip dysplasia advocate who was diagnosed and underwent bilateral PAOs in her 40s. Kelli is passionate about hip dysplasia education and awareness and runs the Hippies Club.

Sofia

Sofia is an active teenager who is recovering from PAO surgery. She required a blood transfusion after surgery and encourages people to donate blood and plasma if they can, since she truly understands the benefits of this gift.

Colette

Colette had the unique experience of caring for patients undergoing PAO surgery as a healthcare professional while navigating her own hip dysplasia journey. Colette ran her first marathon a month before her PAO and is already looking forward to running many more miles!

Gabriella

Gabriella had hip pain for 10 years before being diagnosed with hip dysplasia. She recently had a PAO and is looking forward to seeing where the next few months take her.

Thank you for enjoying the hip dysplasia stories. The stories shared by our community members are intended for information and entertainment only. We are incredibly grateful to our hip dysplasia community members who have taken the time to share their experiences and journeys through hip dysplasia. These stories reflect individual experiences and journeys. Nothing in these stories is intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. Miles4Hips does not endorse specific healthcare providers or institutions, and information or opinions shared in these stories does not necessarily reflect those of Miles4Hips or the International Hip Dysplasia Institute.